Saturday, January 5, 2013

The Journey Begins!


And so the journey begins!
Dad, Mom and I will be driving to Santa Barbara in two days, Monday, Jan 7, 2013.
Tyson flies in late Monday evening.
Jaw surgery is schedule for Thursday, Jan 10. I have appointments the two days prior with the hospital,  the surgeon (Dr. Arnett) and a cardiologist.  During these two days I am going to eat everything and anything I want and not feel any guilt whatsoever! (..aaactually I have been doing that this whole last week and it feels so great!)
Out of state patients are scheduled to stay in Santa Barbara for 3 weeks. Then we will return to Vegas where I will have weekly check ups with my orthodontist (Dr. Spilsbury) for 8 weeks. I plan to hibernate for the next 3 months!

Here is a brief history (and by brief I mean long)...

   Jan 2008, symptoms started in my jaw- locking, popping, clicking, soreness, stiffness. At one point it got so bad I could only stand to eat about 5 bites of food
   Went to my dentist who said it was TMJ
   We went to see my orthodontist, Dr. Spilsbury who is a TMJ specialist. After consulting he suggested I go see Dr. Arnett. (He is the same surgeon who did my mom's jaw surgery 10 years ago)
   Consultation with Arnett Sept 2008
   Learned I had severe TMJ and arthritis in both my jaw joints which has deteriorated the jaw bone to 1/3 of it's normal size.. Imagine a pencil eraser = normal, pencil tip = my joints
   It has caused the jaw to recede backwards, closing off half of my esophagus and creating an open bite
   Can no longer eat sandwiches, pizza, tacos etc. Meat falls right out of the middle, cheese slides off top because I can't bite all the way through, due to the open bite
   A little bit of a lisp started around the time the open bite was getting worse
   SEVERE headaches began. Probably lasted from 08-09/10. Felt like someone was pounding two 6 inch long, fat screws through the back of my head up to behind my eyes
   Couldn't sleep. Dreaded bed time (and we all know how much I LOVE my sleep)
   Tyson would find me watching informercials in the middle of the night while silently crying. He would massage my head to try to ease the pain
   Crying at bed time was a nightly routine
   After the headaches subsided, depression sunk in. Along with an evil spirit I have never experienced and pray I never do again- EVER! That was an AWFUL awful feeling. Despair like I have never known it. I asked Ty to pray for me and instantly the feeling was lifted
   Good days and bad days. Happy days and depressed days
   By this point I have lost almost all of my confidence. Looking back now is like watching myself get stripped of my happiness and confidence. I had a "woe is me" attitude a lot. I have grown and learned so much since then.. but I wont go into all that!
   To this day I still stare at Tyson's mouth and teeth and think it's just so cool how it all connects normally and looks so great and he can bite things with his front teeth- I can not wait to be normal again and stop avoiding mirrors
   SOO the only way to fix all this is surgery with many medications to prepare me
   Battled with many insurance companies on helping out with surgery cost (no insurance co. would help)
   Surgery date got pushed back year after year- total waiting time = 4 1/2 years!
   Braces needed before surgery. Spilsbury said only 8-10 months prior, but due to the surgery date getting pushed back, the braces have been on for 20 months now
   Pain with my jaw and neck have decreased a bit since braces have been on and shifting things
   Stomach problems occurred due to the harsh meds
   On the fourth time of getting ulcers and the second time of seeing the gastroenterologist, I had my stomach scoped. Dr said I was lucky I came in when I did- had a large ulcer that was dangerously close to burning a hole through my stomach. On a scale of 1-10 it was a 7-8. 
   More meds- yay me!
   Stomach has felt much better since the new medication
   Still on a bit of a limited diet to help ulcer heal. Haven't had soda since before Thanksgiving, I miss Dr Pepper and Broccoli the most!!
   Been off the harsh meds since Thanksgiving. I pray that in my pre-op Dr visits, my body and joints will be ready for surgery
   So far my blood tests have come back good- we're a go on that part! Cross your fingers that the Dr doesn't tell me a day or two before surgery that my joints aren't ready and we have to post-pone...again
   I had a spiritual feeling last week that all will be well, and I believe it!
   I asked Ty to give me a blessing before I came down to Vegas. It was so nice! I was a tad nervous before then, but his blessing of comfort did just that and now I say - Bring it On! (let's get this over with please!!)
I have forgotten how wonderful blessings are. All those dark times of depression I could have been so much happier and felt so much better! It's just so nice to feel the spirit rushed in, feel so much peace and comfort and know that this will all work out. Why didn't I ask for more!?


We will try to update this blog daily so everyone can stay up to speed. Check it when you want. That way we don't have to call everyone or tell the same thing over and over. Read first, then if you have more questions you can call (mom/Heidi).. or text me because you won't understand me over the phone hah! Posts shouldn't be too long as we will be posting daily and not much will change. I'm sure you'll mostly hear about how the healing is going and how I'm feeling that day (as if I'll be anything but hungry) You may even get lucky and see some nasty, haggard pics of me looking like I just got hit by a train head on and survived! That's all for now, Stay tuned!


Thanks for your concern, prayers and support!


.."Happy hunger games, and may the odds be ever in your favor".. or, uh, actually MY favor :)